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Surgery

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ICU Waiting Area, UWMC, 5E We watched this door open and close for 3 hours before we got to go through it.

ICU Waiting Area, UWMC, 5E
We watched this door open and close for 3 hours before we got to go through it.

As planned, Tim and Yoko drove Mike to UWMC at 5am today.  After checking in Mike went off with the doctors.  The pre-op MRI was over an hour late so the surgery started at 9am (about 90 minutes late).  I picked up my Mom about 10:15am and drove over to meet everyone.  We all waited in the Surgery Waiting Room for the duration and at about 1:15pm Dr. Silbergeld came in to give us the post-op update.

The surgery went well, it took about 4 hours, no major blood loss or complications.  They expected him to wake up in the recovery room in about an hour and a half then transfer him to ICU where we can visit him.

2 hours later we headed to ICU (in 5E wing) and ended up waiting another 2 hours before we could see him.  The doctor then told us that Mike had a seizure during the surgery which is not really common but not altogether unexpected.  As a result though he’s having trouble recovering.  He still wasn’t awake, but he was thrashing about trying to pull tubes and wires off his body, and the nurses were having trouble restraining him.

Quote of the night (via Dr. Gabikian) – “He’s a big guy, who had a seizure during surgery, he’s not real happy right now”

In the end we decided to leave, he most likely won’t be awake for several more hours, they are going to do another CT and another MRI in that time to check on things.  Dr. Gabikian did say he’s confident that Mike will be fine once he fully wakes up.  Mom, Yoko, Tim, Myself braved the rush-hour traffic, rain, and high winds across the 520 Bridge to get home and be with Mike’s two boys.  Mike’s real dad, Dan, stayed for now.  Tim and I are thinking we’ll go back after dinner and check in.  Seeing him in ICU was a little shocking, he definitely looks like he’s been through some trauma.

Devon made very good casserole for everyone which was awesome!

While we were eating dinner at home, Tiffany (Mike’s ICU Nurse) called with a few questions and told my mom that they did a CT scan and it looks really good.  Apparently they had to give him a sedative just to get the CT scan done.  So now he’s got the brain surgery, seizure, anesthesia, AND a sedative keeping him out of it.  He still wasn’t awake and he was still thrashing about in his bed.  The fact that he isn’t awake IS a concern.  My aunt, who is a nurse in San Francisco, mentioned that they generally DON’T give brain surgery patients any sedatives since it can affect the process or orientation following the serious.

Scoring him on the GCS (Glasgow Coma Scale), based on what I saw in the ICU he shows up about 6.  8 or less is a “Severe Coma”.  I believe that this is all related to the trauma from surgery and seizure but it is still disconcerting.

Later, Mike’s dad Dan called and said that he had sat with Mike in the ICU for a while, just telling him everything is okay and holding his hand and finally Mike settled down and appeared to be sleeping.

Tomorrow we are hoping to get some information from the MRI early AM and some of us will be heading over there pretty early in hopes of seeing him awake.  Assuming he wakes up…..

Category: cancer

Scheduled

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UW Medical Center Campus

UW Medical Center Campus

Today my brother had pre-op appointments with the Neurosurgery and Anesthesia clinics at UW Medical Center.  They filled out all the necessary paperwork and described the entire procedure in detail.  He will be under general anesthesia during the operation.

The schedule is pretty well set for the Tuesday surgery…

  • 5:15am – Arrive at UWMC, check-in.
  • 7:30am – Surgery begins
  • 12:00pm – Surgery expected to wrap up, wake him up, and begin talking to him to assess brain function.
  • 1:00pm – Move to ICU room and available for visitors.

I’ll be heading over there sometime in the morning but I’m not entirely sure when.  I might go sometime around 10am and take either my mom or my brother’s wife with me since they will likely be home still.

Category: cancer

Confirmation!

Mike just after Christmas, he shaved his head for fun since he knows it will be shaved by the doctors anyway.

Mike just after Christmas, he shaved his head for fun since he knows it will be shaved by the doctors anyway.

Yesterday we took my brother to UW Medical Center for an MRI and consultation.  The MRI took about 40 minutes and we then went upstairs to Neuro-Surgery and checked in.  After reviewing the new MRI and the CT from japan, the Chief Resident on Neuro-Surgery there came in to talk to us.  Dr. Patrik Gabikian who seems to be about the same age as me has a good smile and started off asking my brother about his seizure, about any other symptoms (which turned out to be Aura’s that he’d been having for a couple months) and then asked about all sorts of random things.  The serious of questions were purposely designed to establish how his brain was working and establish right/left dominance.

Dr. Gabikian explained that there is an “abnormality” which appears to be a tumor, in the right frontal lobe.  The good news is that my brother is left-brain dominant so language and cognitive functions are fairly safe but it could still affect motor function.  The mass is about 55mm (just over 2 inches) in size and it concentrated but irregularly shaped.

He gave my brother 3 options,

1.) Do nothing and let it go, check it in a few months.

2.) Perform a biopsy to get a diagnosis from pathology, then come back for further treatment.

3.) Skip the biopsy and have surgery to remove as much of the mass as possible and give it to pathology for a diagnosis.

Obviously the doctors recommended option 3 because it means only a single operation, and better chance for diagnosis.  Risk of complication seems about the same and it accelerates the treatment.

After that discussion, we met Cynthia, the Case Nurse/Patient Coordinator that I’d been talking with on the phone to get the appointment and she introduced us to Dr. Daniel Silbergeld, the Attending doctor and head of Neuro-Surgery at UW.  He showed us the MRI and went over the options again, and some details about the surgery itself.  He explained that he only works on Brain tumors, has been doing it for 25 years and said there is no way to know what kind of tumor it is without the pathology tests and as such will not make any guesses about it until pathology results come back approximately 5 days after the surgery.

I got the sense that these 3 people are a VERY good team.  Dr.Silbergeld has extensive experience–apparently he trained the Nuero-Surgeons at Swedish.  He has worked with Cynthia for close to 20 years and Dr. Gabikian seems highly intelligent.  All three have very comforting “bedside manner” but are also very direct.

So my brother has pre-operation appointments totaling 4 hours on Friday 1/2/09, then the actual surgery is scheduled for Tuesday 1/6/09.  UWTV has video available online about a patient who went through this whole process.

    http://www.uwtv.org/programs/displayevent.aspx?rID=4129

It’s definitely an advantage to be living so close to UW and Fred Hutchinson

Somewhat related – I found an interesting article about Tumor Paint from Fred Hutchinson, and apparently Dr. Gabikian was one of the researchers who found a technique for illuminating small pieces of cancer cells that the MRI can’t see.

    http://www.fhcrc.org/about/pubs/quest/win07/scorpion.html

Category: cancer

Home For The Holidays (and the Doctors)

My Brother’s CT film from Japan.  The dark spot is the tumor.  The top of the film is the front of his head (forehead).

My Brother’s CT film from Japan. The dark spot is the tumor. The top of the film is the front of his head (forehead).

My brother’s flight from Japan landed Christmas morning in Seattle.  After doing the Christmas morning thing with Devon’s family we headed back to my parents around lunch time.  He seems in good spirits but he’s in obvious pain, he’s tired, he’s weak.

We played Uno, had some lunch, ate ice cream, tried a rice snack from Japan, and generally hung out around the house.  My brother had his CT scan film from the hospital in Japan so I had to look, and I took a photo.  In the above picture you can see the tumor, it is the large dark area in the upper right corner.  It is up in front near the forehead.

Tomorrow we go in to UW Medical Center in Seattle for an MRI scan.  I’ll be really interested in hearing from the UW doctors about the details of this thing.

More to come as details emerge..

Category: cancer

It Can Happen To You!

Primary Brain Tumor as illustrated by the National Institute of Health

Primary Brain Tumor as illustrated by the National Institute of Health

I got a THE call last night from my mom.  My brother is officially in bad health.  He’s in Japan right now for vacation, visiting his wife’s family.  Apparently he had a seizure while riding in the car near Nagoya, Japan and after being taken to the hospital a CT scan shows a 2.5” tumor in the brain.  Since he’s a US citizen, and employed in the US, he doesn’t have any health insurance in Japan.  Doctors gave him anti-seizure pills and sent him back (in Japan) for now.

In the meantime, we are trying to get him flights back to Seattle and I’ve placed calls to the Seattle Cancer Care Alliance to discuss anything we can do to help him before he gets back in the country.

The last email I received said that his diaphragm was damaged during the seizure, and my mom mentioned that can’t get out of bed, his muscles are all messed up and he’s in pain.

Update:  Email from my mom says he’s arriving in Seattle from Nagoya, Japan at 6:45am on Christmas day.  I’ll chat with the case nurse at SCCA tomorrow to see what’s next.

Category: cancer

Diverted

Part of the Arrival/Depature board at Sea-Tac when we finally arrived by bus. You can see various delayed flights and one Alaska flight that says “-Boeing” next to it which I think means it was diverted like us.

Part of the Arrival/Depature board at Sea-Tac when we finally arrived by bus. You can see various delayed flights and one Alaska flight that says “-Boeing” next to it which I think means it was diverted like us.

So after a night relaxing weekend in Gilbert, AZ consuming more than one turkey and more trimmings than I can really disclose, Devon and I headed home to Seattle this evening via US Airlines Flight 73.  Now this is my first flight in a long time, possibly ever, on US Airways as I opt for Alaska Airlines as much as possible and according to the in-flight magazine of our Boeing 737-300, US Airways recently was awarded 1st place in overall on-time performance so that’s something. But somehow this didn’t help us today.

img00449First problem we encountered was the $15 charge for each checked bag.  But we were prepared for that since we each had only one carry-on.  But wait, as we boarded the plane all of the carry-on space was full and they forced the remaining passengers to check their bags right there at the gate.  Fortunately we didn’t have to pay the $15 fee.  I managed to grab my wallet and car keys out of the bag before they took it.  This becomes important later.

Second problem, the plane boarded late due to some mechanical issue…

Third problem, $2 drinks on the plane.. oh but if you want alcoholic drinks, that’s $7.  This $2 charge includes coffee as well.  What a crock.  I’m not sure if they ever even mentioned food.

Fourth problem, horribly uncomfortable seats…  It could be the age of the plane, but for some reason my back was hurting and I felt like I was sitting in an awkward position the entire time.  Devon felt the same way.

Then there was the landing…  Well we sat in a holding pattern around Sea-Tac for a while, then began our approach.  We dropped into the fog which was blanketing the whole area and extended flaps, lowered landing gear, then suddenly powered up and climbed out of the fog again.  We couldn’t have been more than 30 seconds from landing.  More holding pattern and finally, an announcement… “Sorry folks, we’re having a problem with minimum weather at Sea-Tac and there will be a delay in landing”

img00452More holding pattern time passes, it’s close to an hour after our scheduled arrival by now and a new announcement.  “We are unable to land at Sea-Tac so we are being diverted to Boeing Field”.  What?!?  Since when do planes divert there?  So we land at Boeing Field (aka King County International Airport) about 20 minutes later and sit on the taxi-way for a while.  The captain tells us that they are working with their dispatch and will tell us something once they know something.  We taxi further in and finally park the plane near the main Terminal.

New announcements tell us that they are working on getting some busses to take us to Sea-Tac from Boeing Field but not sure how long that will be.  Suddenly the $2 drinks are free..!!  At 9:30pm (100 minutes after our scheduled landing at Sea-Tac) we disembark from the plane via the “sky-stairs”… (or “air-stairs”, I forget) which are slippery due to the misting fog.  We get off the plane and head into the Terminal which has been unlocked and lit up in the last few minutes since the airfield was closed for the evening.

img00455We congregated as a group and waited for more information when finally an off-duty pilot gave us his best guess.  Busses will be here sometime, but it could be a while.  Our bags will have to be securely transported to Sea-Tac which will definitely take a long time.  The baggage handlers still have to come from Sea-Tac to work on that.  We probably won’t get our bags until tomorrow.  The first bus showed up shortly after that and took a whole load of people to Sea-Tac.  In talking with the crew I found out that the fog blanketed the whole area, Sea-Tac, Vancouver BC, Portland, OR, and Spokane, WA were all diverting flights.  We were actually supposed to go to Boise, ID as the closest clear airport but we didn’t have enough fuel to make it there.  We got on the second bus about 10:10pm.  Just before we left we heard that the fog wasn’t lifting any time soon, there were 13 other planes circling Sea-Tac before we landed and some of them will likely have to land here too.  Boeing field only had enough parking room for two 737’s like ours so only 1 more plane could land and park.  A third could land in an emergency but it would have to park on the runway rendering any further landings impossible.

Since we were forced to check our carry-ons at the gate in Phoenix, we left the airport with nothing except our wallets and cell phones (I’m really glad I grabbed my car keys and wallet when they checked my carry-on).  I did have my laptop since I don’t trust it being put in checked bags.  I did not have the parking card to pay on the way out.  Apparently they pay parking attendants to walk every stall every night and get the license plates of every car so if you are there overnight they know how many nights you stayed.  This made leaving relatively painless (except for the $130 parking fee at $26/day).  We made it home at 11:15pm just in time to go to sleep.

Tomorrow we have to figure out how to get our bags from US Airways, then pick up 2 dogs and a cat from 3 different places, and somehow work a full day. Not sure how that’s all going to work out….

Category: travel

CTYL Memorial Day Camping 2008

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Campers Enjoying the Group Fire pit at the 2006 CTYL Memorial Day Camping trip.

Campers Enjoying the Group Fire pit at the 2006 CTYL Memorial Day Camping trip.

CTYL Camping is coming up quick.  Just had our second committee meeting today and have a handle on the shirt artwork as well as some games and prizes for campers.  Things are looking up.  Next task for me is to update the website with the camping details and start getting people to register!  I can’t wait for camping this year.

This will be the 10th Year for the camping trip and we expect over 40 campers again.

Category: CTYL

Success!

ctyl3

Well, the Charity Fundraiser Party was a total success.  The food was great, the Wii Sports competition was tough and auction bids were generous.  In the end we reached our goal of $2000 net profit from the evening.  The money will help CTYL expand our giving programs for the year 2008.

Thank you to all who attended and especially all those who helped us make this a successful event!

Category: CTYL

Fundraiser Rescheduled for January 19th

Charity Through Youthful Living Holiday Formal Fundraiser Saturday, January 19th 8 - 11pm Winters House 2102 Bellevue Way SE, Bellevue, Washington Celebration * Silent Auction Auction featuring a Nintendo Wii* console system

Charity Through Youthful Living Holiday Formal Fundraiser
Saturday, January 19th, 8 – 11pm
Winters House
2102 Bellevue Way SE, Bellevue, Washington
Celebration * Silent Auction
Auction featuring a Nintendo Wii* console system

Well, due to the Snow on the 1st, we had to reschedule our Charity Fundraiser.  So we’ll now be holding it on January 19th, 2008 at the same time, in the same place.  We’ll be expanding our auction in the meantime and inviting even more people to attend.  We’ll see you all there!

For more information, visit the CTYL Fundraiser page..

Category: CTYL

It’s Snowing!

Photo Taken in Sun Peaks, BC, Nov 21st, 2005 by Devon Thurtle

Photo Taken in Sun Peaks, BC, Nov 21st, 2005 by Devon Thurtle

Well, it started snowing about an hour ago.  And it’s coming down pretty good.  In the meantime we’re planning on having our Charity Fundraiser Party and Auction in Bellevue tonight….

EDIT:  We had to cancel the Fundraiser due to the snow.  It snowed from 1pm through 6pm and then again later in the evening continuing until Sunday morning.  It seemed prudent to keep people off the roads.  So we will reschedule the Fundraiser for January most likely.  This will also give us time to increase our marketing and get even more people to attend.

I bought a new suit that I planned to wear to the Fundraiser.  It’s the first suit I’ve ever owned.  For those thinking about buying a suit for whatever reason, I recommend The Mens Wearhouse.  The staff was great and their prices are pretty good.  I still blew about a grand, but I got the suit along with 7 shirts, 5 ties, shoes and a belt.  Plus a little tailoring on the suit.

Category: CTYL